The COVID-19 pandemic is a catalyst to accelerate the adoption of technology-enabled patient care for epilepsy, according to a new study published in Epilepsia.
Building on the HSE eHealth Ireland funded Epilepsy Lighthouse Project, the research was led by FutureNeuro, the SFI Research Centre for Chronic and Rare Neurological Diseases, hosted by RCSI University of Medicine and Health Sciences. Funding for the project has continued through the Health Research Board (HRB) Applied Partnership Award.
The study describes an electronic patient portal for people with epilepsy that has been developed for patients in Ireland. Named PiSCES (providing individualised services and care for people with epilepsy), the portal is linked to the Irish National Epilepsy Electronic Patient Record.
PiSCES gives people access to their medical record documenting their epilepsy care anywhere there is an internet connection using a smartphone, tablet device or desktop computer. Users of PiSCES can access their clinic visit summaries and tools to report outcomes, such as frequency of seizures. The portal also allows people to track epilepsy care goals and send secure messages directly to their healthcare provider.
Our work on the development of PiSCES patient portal for epilepsy began before the COVID-19 crisis with the aim of facilitating better patient and family-centred epilepsy care by improving the link between people with epilepsy and their clinicians.”
Mary Fitzsimons, eHealth Lead at FutureNeuro, RCSI
“The COVID-19 pandemic has increased the urgency to accelerate much needed health